Monday, 11 August 2014

Deferred Gratification

There's a white room.

You are sitting on the only chair and there is a table. The only other things in the room are a jug filled with diluted bleach, a plastic cup, a laptop with a wi-fi connection and a syringe marked "antidote".

Every three hours, you must sip your way through a cup of the bleach solution. If you choose, you can down it and wait for the next cup. You soon learn that's the best way. There is absolutely no way of avoiding the bleach. If you were to try, you'd be dead within a few days.

Every sip rips through your oesophagus to rest just above your solar plexus in a ball of unspeakable pain. It slices and gnaws and burns like a little part of hell itself.

You come to dread that cup and the jug and even the chair. The only thing you have to distract you is the infinitely captivating world wide web. You can absorb yourself in dramas or documentaries, music or poetry. You can research great conundrums or chat with friends. You can read novels, or play quizzes, you can learn a new language or anesthetise yourself 24 hours straight with cute kittens. But distraction is all you have. The only opiate you can rely on.

You only get one antidote per week. Once you've used it, you must bear the next 6 days no matter what. Constantly you ask yourself, "Is it now? Do I give up now? Can I take any more, even just a few minutes?" Whatever happens, you are the one who has to choose. No-one can do it for you, you're totally alone in the room.

Endlessly, endlessly, endlessly, the thing sustaining you is the thing causing your suffering. The only other option is death, so no matter how hard it gets, how desperate you feel, you have no choice but to keep sipping that bleach. Often you wonder if the mere act of it keeping you alive is enough. Is life really so important that you will go to any lengths to cling to it? Many days you struggle to remember why this life is so much better than the alternative.

But you always remember in the end, always. Every single breath you take whispers "I'm a Mum, I'm a wife, a daughter, a friend." There is simply no "quit" button.

So you sip and you burn in an endless loop.

And it's those final hours just before the week gasps away that are the hardest. Something about imminent relief somehow makes the here-and-now pain harder to bear. You find this odd. Surely it should be the other way around? But like a long car journey, it's always those last few miles from home that seem to take the longest.

You count out every minute. You try everything not to, but clearly time has stopped. Every time you glance at the clock it seems not to have changed. You begin to believe the very laws of physics have altered, just for you.

Soon, you are gritting your teeth through the sheer force of self-denial. You sweat, silent tears falling onto your cheeks. Gutteral, bestial noises escape from you like pressure cooker steam, involuntary and strange, as though they are coming from someone else. They surprise you.

Distraction is in fragments, almost shattered completely. You read the same paragraph over and over and over again, watch the same movie scene. You re-wind and re-peat and re-watch but just cannot snatch a single one of those elusive, whirling, distractions.

At long last, like rain after a long drought, the antidote is yours. You grab it, you're shaking. It's almost too hard to administer it at all. You remind yourself you have to focus for just a few moments more.  Finally, you start to feel it, seeping and warm, spreading to every last cell.

The relief is overwhelming - so overwhelming that you start to cry all over again from sheer cathartic release. That relief is like bread to a starving man, like a breath of life itself.

How is it that those clocks sped up? That time now passes in cotton-wool chunks, blurred and casually ignored once again? How is it that relief hours are so much more fleeting than suffering hours? The pain is gone, but only on the surface. Somehow, it's taken you with it, replaced your soul, your very spirit. You're left feeling depressed and anxious but you couldn't say why. You can't explain that sudden lack, that chasm so recently filled with pain, now echoing empty and rootless.

Yet all too soon it is wearing off, seeping away as quietly as it came. You try to hold those anti-dote minutes and hours in every last cell, but it's beyond your control. Everything is beyond your control. Except the table, the cup, the jug........


There is often a terrible paradox in long term illness. The very thing causing your suffering is the one thing you have to do to survive. I have bowel disease but food is not optional, basic sustenance is compulsory. All food is bleach to me. Those with failing lungs still have to breathe, air is their bleach. Those with failing minds still have to think.

Clearly only the most committed masochists would ever survive it.

Wednesday, 6 August 2014

What Free Press??

My disgust at our media has only grown over the last four years. Of all the things that make me sit in horrified wonder throughout this whole rancid mess, it's the lack of balanced reporting over Iain Duncan-Smith's "Welfare Reforms" and particularly, how they are decimating the lives of sick and disabled people.

Don't believe me? Think I'm paranoid or unreasonable? 

Let me prove it.

In March 2012 you might remember there was a national panic over some faulty breast implants called "PIP" some 47,000 UK women had these implants and had to consider having the implants removed.

So these women had CHOSEN to have serious surgery to get larger breasts and then had to face that they might need MORE surgery to put things right. A terrible story, certainly, but one of vanity matched with incompetence.

In 2010, it just so happened that the new coalition announced that they would scrap the main disability benefit (Disability Living Allowance or DLA) entirely and replace it, coincidentally with something called "PIP" (Personal Independence Payments). Incidentally, it wasn't in either coalition party manifesto.

Under these reforms some 3.2 MILLION sick and disabled people would be affected and a horrific 600,000 were projected to lose the help they get to leave their homes or pay for care. They would lose in many cases the very right to any kind of social life. They would lose their independence, their freedom to do the things everyone else takes for granted. When the new benefit was announced it was claimed that 20% of the existing "caseload" would be cut.

The DWP have since said
“We were aware that the vast majority of recipients of DLA were individuals with genuine health conditions and disabilities and genuine need, and that removing or reducing that benefit may affect their daily lives.”
Now, even if you don't open links that often, PLEASE click on the following three. The first is a page search from Channel 4 News which shows that 8 out of 10 of the stories returned are about a 3 month cosmetic surgery scandal, yet just 2 are about a 4 year welfare story that has now fallen into total crisis, leaving a quarter of a million sick and disabled people stuck in limbo with no assessments and no payments. 

The second is BBC News. This is a much more complicated picture as the results come up in date order. However, even now, in 2014, 2 years after the breast implant scandal, there are as many stories relating to that as to the disability benefit. More tellingly, look through the links and you'll see that incredibly rarely did the disability story make it from the website to the actual news. There are few video links whereas there are many more for the breast implants. 

Finally, and most spectacularly, here is ITV News. By the time I got bored of counting there were no fewer than 15 stories about the breast implants and just one - yes one - about the disability benefit affecting 3.2 million sick and disabled people and plunging further into utter chaos by the day

** Sky's news search is so appalling it just brings up random stories of all kinds. 

How do I sum up? My horror is so great, my fury so overwhelming, I just don't have the words. 
But I suppose I sum up by making it very, very, clear that it is only a matter of time before the full horror of these failures is known. I predict that by the end of this year, the misinformation and chaos at the DWP will be fully revealed and the public might be pretty eager to know how on earth all of this went on, under their very noses, yet no-one told them about it. That barely one journalist made it his or her business to challenge IDS properly or stand up to his bullying. 

Not one scheduler made it his or her business to make sure disability stories were slotted in, not one producer cared enough to make sure that sick and disabled people were heard. Barely any interviewers were brave enough to stand their ground, live on air and none would do so repeatedly.

Shame on them all. 

Thursday, 31 July 2014

Confirmed - The FULL Impact of Cuts Disabled People Face

Since the coalition came to power, sick and disabled people have claimed we are being fundamentally harmed by the coalition welfare reforms. Not scroungers or skivers, but  people living with long term serious illnesses like me, or who live with physical disabilities. Adults AND children. Young and old. People with terminal conditions, people with kidney or heart failure, people waiting for transplants and even people in comas. None have been spared. The government repeatedly assure you they have. 

The government have of course denied that they are putting an unreasonable share of austerity cuts on us. Repeatedly and often aggressively. This is how they respond to the UN of all people :

Since 2011, almost every main voice involved in the services and systems that support sick and disabled people have argued that we must know how all of the changes TOGETHER have affected us so particularly. 

Everything we rely on has been cut severely - in some cases by up to 40%. Disability benefits, sickness benefits, social care services, housing support, legal aid for tribunals, respite care, the independent living fund, council tax relief, higher education funding, everything. 

It is very possible that if you were affected by one of the changes, you were affected by several or even all of them. 

Whilst the government paid lip service to assessing what impact their reforms would have on sick and disabled people, they only did so one by one. They always claimed it was impossible to assess them all together and specifically, how they would affect disabled people when combined. 

It has been a long and dishonest journey. As with so many things, the government have done everything in their power to keep the figures from the public. 

They said that it wasn't possible despite a petition gathering over 100,000 signatures calling for what they called a "cumulative impact assessment" or CIA. (Scroll down for gov response)

The government treated the debate it generated in parliament - a debate sick and disabled people themselves worked so hard for - like a Punch and Judy show of partisan nonsense. You can watch it for yourself if you click on the following link :

They said it wasn't "robust" when both the very well respected Dr Simon Duffy from the Centre for Welfare Rerform and the equally well respected think tank Demos produced models they believed were viable. 

And finally, just 2 days ago, Lord Freud, the failed millionaire ex-banker who re-designed our entire welfare system in just 3 weeks, wrote an official response to the SSAC, the government's own Social Security Advisory Committee, who also called for a CIA relating to disability, confirming yet again, that he believed it was impossible to assess all of the changes sick and disabled people have faced and claiming that the IFS, the all powerful Institute for Fiscal Studies, agreed with him. 

This was yet another lie from Freud - there is no other word for it. As the IFS have confirmed 

“We can’t find anything we have written down saying we can’t do a CIA....We do think it is possible to do a CIA of tax and benefit changes for the disabled population as a whole."

As it happens, they did one themselves for Wales

Today, at the request of the Equality and Human Rights Commission, (EHRC) NIESR, the National Institute for Economic and Social Research have produced a definitive CIA and it is shocking …
"Figure 4.9 shows that households with disabled children lose out by more in cash terms than households with disabled adults, with households with disabled children and adults losing out by more than either group – around £1,500 per household per year on average. 
 "Households with no disabled adults or disabled children in the 7th and 8th deciles [wealthier households] actually gain slightly from the reform package, whereas households with disabled adults or children (or both) lose out. At the bottom of the distribution, households with no disabled people, or with disabled adults, do not lose as much on average as households with disabled children, or both disabled adults and children. In percentage terms the distributional effects are fairly regressive across all four groups, with households with disabled adults and children doing worst of all up to the top decile."
As one of the authors, Jonathan Portes says in an article for the Guardian today 
"Modelling the cumulative impact is feasible and practicable – at least by gender, age, disability and ethnicity. Our model isn’t perfect and could be improved, but it can be done.....Families that have a disabled adult or child lose perhaps five times as much proportionally as better-off able-bodied families."
There is now absolutely no doubt at all that sick and disabled people have been hit over and over again by a barrage of cuts and the more vulnerable the family; the more disabled people within it; the more they have lost. 

The DWP, Iain Duncan-Smith, Lord Freud and many right wing media outlets have kept this information from the public through every possible means. They will probably do so again today. 

But over 100,000 people signed the WOW petition. 

Think tanks and charities and many journalists know that this is hugely significant. And as ever, we can and will make our own news. 



We now know that this government have harmed the very people they promised us they would protect. They have harmed the very people that voters never wanted to be harmed. They have lied about the harm being done at every stage and have actively tried to keep it from both parliament and the media. 

If ever a story needed to be seen and understood, it is this. If you never bothered to click on the links in an article for more information before, click on these. It is a shameful and repellant story and those responsible have no place whatsoever within 100 miles of Westminster. 

Friday, 25 July 2014

DWP Admit Knowing They Would Cause Harm

I hate this fight and everything it says about my country.

But I dearly love the remarkable characters who've stepped up (or hobbled in many cases) to face it.

We are often unlikely warriors, with our limps and our oxygen tanks and our feeding tubes. But perhaps there was something the DWP didn't realise. Far from being easy victims, weak and helpless, it turned out (as we argued all along) that we were unbreakable.

Doctors hadn't broken us, endless hospital stays hadn't broken us, misdiagnoses, constant forms and judgement and unnecessary bureaucracy hadn't broken us. "Suffering" or "Hunger" or "Terror" might be abstract terms for most, but we had triumphed over them all. Some of us for decades in an endless Groundhog Day loop. How ironic that the DWP thought they had picked the most vulnerable targets of all, but found, in fact, that no elite crack squad of Royal Marines fight as hard as a group of sickies faced with destitution.

And so it is with Steve Sumpter and the "20 Metre Rule" "Latent Existence" to many through his blog and twitter accounts.

This is a long and tortuous story that I will try to cut short. The government decided that they were going to scrap Disability Living Allowance, the main benefit (for some 3.2 million, in OR out of work) that covers the extra cost of being disabled. There wasn't a hint of it in their manifesto. The new benefit (Personal Independence Payments or PIP) aimed to cut 20% from the existing "caseload". Whether it had any aims other than cost cutting is unclear.

The first Spartacus Report exposed that the new scheme was almost unanimously opposed and that the case they were making for why it needed cutting at all was dishonest. Undeterred, they marched on, ignoring all advice and overturning every sensible amendment made to the changes in the Lords.

Just as the details of the new benefit were being finalised, with no consultation or prior warning, the government announced that the qualifying distance you were able to walk to qualify for full mobility support would be slashed by an inconceivable 60%. From 50 metres to just 20 metres. The government estimated that a whopping 600,000 disabled people would lose their support from this measure alone - to give you some idea, 20 metres won't get most people to their car or even to their own bathroom. We took the government to court, arguing that the lack of consultation was unlawful and we won. We forced them to consult properly before they could go ahead. A new Spartacus report showed that over 30,000 people would no longer be able to get to work if the changes went ahead directly contradicting claims the coalition have always made that these changes were about helping sick and disabled people INTO work.

From the new consultation, of 1142 responses just FIVE supported cutting the distance to qualify for mobility support from 50 metres to 20 metres. The government ignored the consultation and went ahead with the change anyway. That, is not illegal.

So we took them to court again. With the unfailing support of Leigh Day Solicitors and Public Law Solicitors, we challenged the 20 metre rule itself.

That sounds easy doesn't it? But I think we forget that one brave individual has to be the "test case". One person has to stand up and say "OK, I'll put myself through all of this on your behalf." Going to court is unpleasant in every way - it's stressful, intimidating, frightening and physically demanding. Your life is exposed along with every last one of your insecurities. And you, small, insignificant, you must take an entire government to Judicial Review. If ever David and Goliath fitted modern allegory it is this. To top it all, Steve has ME along with other congenital conditions that make this fight more demanding than most will ever know.

The fact that he will detest this post and chastise me for writing it says everything about the man and his tirelessly supportive partner - who incidentally has given up her own successful career to be his carer. Let's not forget that all around the country people make this decision every day and get almost no support for doing so, saving the government £119 BILLION in the process. 

As with so many of the cases, the court have ruled that the change itself was not unlawful. But as with every other case we have bought, they listed a litany of criticism and rebuke over both the way and the means they have used to push changes through. 

But you can't challenge policy. How about that? I had no idea before I started all of this. A government can pretty much do anything they like and you cannot challenge their right to do so except in very rare and specific cases. All you can do is challenge the way they've bought changes in.

BUT. And here is the big but. In the course of the case, this quote came from the Department for Work and Pensions, presided over with tencious if incompetent zeal by Iain Duncan-Smith.

"This was recognised from the outset. In developing the PIP assessment we were aware that the vast majority of recipients of DLA were individuals with genuine health conditions and disabilities and genuine need, and that removing or reducing that benefit may affect their daily lives. However, we believe that these impacts can be justified as being a logical result of distributing limited resources in a different and more sustainable way…”. DWP
(Paragraph 80)

As Steve says, let's say that again :

"In developing the PIP assessment we were aware that the vast majority of recipients of DLA were individuals with genuine health conditions and disabilities and genuine need, and that removing or reducing that benefit may affect their daily lives. " DWP 

So Steve has fought and some will say he lost - though it may be that there are still other avenues to follow. But from today, we can all say with utter certainty, that this government knew that PIP would cause harm to genuine people in need. But they justified it through austerity. 

They took support from sick and disabled people that needed it to get to work or to get dressed or to buy special treatments, to pay for the risk-taking excesses of out of control financiers we apparently dare not make pay. 

So people like Steve are paying, and fighting with everything they have - and very much they don't have. They're fighting for 3.2 million sick and disabled people to continue to live lives many take for granted every day in a million ways they aren't even aware of. I hope they never become aware of the kind of struggle Steve has faced through all of this. 

But if you ever do, if you ever find yourself sick and frightened, if life ever turns upside down for you when you thought you were the very last person it could happen to, maybe people like Steve will have saved the very thing you don't even know you're losing. 

Thursday, 24 July 2014

Douglas Alexander - you might read this.

I wrote this post in January 2011. Just 8 months after Labour lost the election. Having somehow stumbled across it today, I think a) I seemed to know who Ed would be rather well and b) Douglas Alexander should read it right now.

"Sure, it's tough. You get kicked out of power and 5 minutes later people are screaming "Well what would you do? You haven't even got a policy!!" At the same time, they don't actually want you to have a policy yet, it's too soon. If you start spouting policies, the public will think you're arrogant, that you haven't learned anything from your recent defeat.

You need to accept that you made mistakes, but if you're not careful, you spend so much time in humility, it's hard to point out how the "other lot" could be any worse.

Activists sit nervously, wondering "Will there be passion?" Will there be the fire and brimstone they feel? "Who are we now and who will we be?"

That "Who will we be" is the big problem, isn't it? Who will we be?? What on earth is that? A person who has to ask who they will be hasn't a clue who they actually are. Surely nothing has damaged politics more than watching those who appeal to us for trust at the ballot box morph into whichever politically-hollow-chameleon they think we want to see. We've sunk helplessly into a swamp of "Who shall we be" and seem to have almost totally forgotten how to ask who we are.

In a policy vacuum or a period of consultation, it's that "who we are" that can guide opposition. No matter what the government announce, you know in your soul if you support it or not. You can agonise over your own policy positions until the end of time, but in the meantime, principle should fill the gap. Activists know those principles in their DNA. No-one needs to learn them or make sure they are "on message". Best of all, if you oppose on principal, on instinct, the public sense it. These days, they can smell the blood of hypocrisy from 100 miles. If you oppose by focus group and fear of the Daily Mail, they've switched off before you've finished your first sentence.

So, when Lansley announces his chaotic, destructive plans for effectively privatising the NHS, the principles of a universal service, free at the point of use are all you need to defend. You can support that principle violently without yet needing to say what you'd do instead.

When nurses or fire fighters or police officers face redundancies by the tens of thousands, you know that of all the people in society you need to fight for, to speak for, it's them. If you've just spent 13 years in government building up their numbers because the pursuit of excellence in our public services underpin everything you stand for, then the principle will always retain credibility.

When benefit changes mean that hundreds of thousands of the poorest members of society will lose their homes, forced to move away from everything they know and rely on, the principle, stamped indelibly on the back of your membership card, that we "live together freely" tells you all you need to know. When those same reforms threaten to leave paraplegics without wheelchairs or cancer patients without hospice care, then surely that is a direct threat on the ability to "realise our true potential?"

When banks announce £7 billion in bonuses as reward for a system that failed so utterly we will be paying off their greed for generations, "Power, wealth and opportunity" are hardly resting "in the hands of the many not the few." That underlying principle that forged the party and shaped your vision of society gives you the legitimacy to claim "Well, whatever we decide, no party of mine would ever support that."

The problem is that legitimacy isn't it? Labour can only claim those principles if they again hold them dear. One PFI scheme too many, one war too far and those principles are shaken. Suddenly we're worrying more about the "squeezed middle" or the "worthy poor" than the worries that underpin all of our lives.

The wealthy and powerful vote Labour too. In fewer numbers, certainly, but still in their hundreds of thousands. Not in self interest, but because they don't want to live in a gilded cage, sitting on a pile of cash while the poor starve and the sick suffer. They vote for the principles on the back of that Labour membership card. As long as the policies eventually reflect those principles, leaders can speak to all of us, not just to the contrived section of society focus groups favour that week - "Alarm clock Britain" "Mondeo Man" or "Worcester Woman." Perhaps most importantly of all, they might begin to speak again for the 35% or 40% of the population who no longer even bother to get up from their sofas and vote for anyone at all. The millions who believe politicians have no principles left.

Principles don't send you careering back to 70s militancy or 80s un-electability - far from it, they adapt to any time, simply underpinning the political compass, uniting a broad church of opinion behind a few unbreakable beliefs. They keep the Blairite and the Union leader fighting together, benefiting from each other's perspectives, safe in the knowledge that whichever policy ends up on the table, they will still be campaigning together to protect those vital principles.

A party that is frightened of it's principles looks hollow and unsure.

When Blair came to power, it was horses for courses. Labour had to finally prove that they could unify, it had to prove that whilst protecting Labour principles, they could slay Tory dragons. It had to shake the long held confidence of the Tories that only they would ever claim to be able to manage crime or inflation. The public wanted a massive reward for the trust they'd shown in allowing Blair not one but two unprecedented landslides. "Govern for us all" they said. Whatever you think of him now, his government achieved some basic principles that Labour had fought for since its birth - a minimum wage, free nursery education, excellence in health care and a passionate commitment to alleviating world poverty.

Ed finds himself leader of a party who lost their way. A party who forgot that whilst we govern for all, we fight for those who cannot fight alone. His great task is to prove that we remember why we exist. All the while there is still inequality, all the time we face exploitation, all the while people suffer injustice or prejudice they need a strong, confident Labour Party to show that their principles can offer the answers.

I don't think anyone wants him to fight Cameron on his own turf, as Cameron fought Blair and Blair fought Major. They want him to claim back the principles we allowed to fall away at times when reading that little membership card would have saved disgrace. Ed is no Cameron. He's inclusive and thoughtful and he's certainly no rudderless autocrat. If he allows our principles to shape his leadership and starts to convince the electorate that he knows instinctively what they are, then focus groups and tabloids start to lose their grip on policy making. I can't think there can be anyone in the UK who wouldn't agree that was long, long overdue.£

Thursday, 17 July 2014

Clegg and the Bedroom Tax Bonanza

It's July. Any minute now politicians will go on recess and won't really be back - what with Conference season - until October.

By October, it will be election frenzy central.

Our mendacious and slippery deputy Prime Minister has u-turned on the Bedroom Tax. There ALWAYS had to be an issue over which he decided to split from the coalition. He can hardly go into an election as the junior partner in a coalition can he? He will go into it as the leader of the Liberal Democrats, whatever we might think of that.

He has chosen his first big step away from Cameron's shadow to be about the Bedroom Tax. Specifically, he has chosen to highlight sick and disabled people within this policy.

I've said this so many times, but politics isn't a love affair. It always amazes me how people judge politicians on their honesty! Surely we must have learnt that this way lies madness? Why would we judge them emotionally, or on their consciences when experience has shown us since the beginning of time that they just don't work that way?

To politicians, politics is a game of chess they must win. No more and no less. We respond to them emotionally, when there is no emotion involved at all.

So today, almost every tweet is of "turncoats" and "opportunism". Yes, of course he's a turncoat, and of course he's opportunistic, what do we expect? But if politicians give you a chink, you crowbar it open.

Is it better to be used as a pawn or left out of the game entirely? Don't pawns have power of their own? Always remember, sometimes they can bring down a King.

It is our unwillingness to engage on their terms, to beat them at their own game, that mans they always win and we always lose. Today, I woke up thinking "How can I use this". I'm not really disgusted with Clegg at all, it would be like being disgusted with a wolf for being a wolf.

I'm faintly pleased he has given me an opportunity to crow a bit at Cameron, expose the cruelty of Bedroom Tax all over again and have a nice little smug glow of righteousness. But that's emotion.

I'm delighted that I can now say "The one issue that finally split the coalition was disability". That's spin, that's powerful and most of all, that leaves Cameron isolated.

When you judge a politician, leave your emotions behind. The only question we ever need to ask is why they've just done what they've done and can it be turned to our advantage. This little gem doesn't even need turning. It haz advantage written all over it.

So I would suggest we turn our tweets and post from howls of indignant hurt feelings into maximum crowbarring. Mock Cameron, revel in the rift and prise it as wide open as we can.

Thursday, 26 June 2014


I am working on a very high profile, very daring campaign. I'm not 100% sure that I will be able to go ahead with it yet, but the planning has been positive and I think it could be the most important thing all of us could do, if we all get behind it and give it everything we've got.

It will cause enormous waves and would open me personally up to scrutiny on a level I've never experienced before. It makes Spartacus Report look like a nice friendly chat.

It's a very specific campaign and I can't share the details with you yet until I've taken legal advice and done some more groundwork. It will require fundraising on a level we haven't attempted yet. This will need trustees etc and a whole new level of organisational accountability.

The Spartacus Network is non-partisan. It has always fought scrupulously to engage with any party who is willing to listen to us. I am not, and I make no secret of the fact that I am a passionate Labour member.

This is a political campaign and will require an enormous degree of message control and strategy. There must very very clear aims that all sign up to. It will need very broad support from all progressives and anti-austerity campaigners. It will not be Spartacus led.

However I look at it, it just can't work unless we work with all parties equally. I can pretty much guarantee that this won't include the Conservatives, they are the major partner in the government inflicting the policies we oppose, but it's vital we win the support of all the other parties. It can only work if it appeals to all. It will need supporters, both physically and virtually, and it will need donors. If we limit that, it will limit the success of the campaign.

The brutal reality of "non-partisan" is that it does exactly what it says on the tin. Tribal politics should be totally irrelevant to a non-partisan campaign and it means we have to be open to working with anyone who is prepared to genuinely engage.

This campaign will need to engage with Labour, Lib Dem, Green and UKIP supporters. It must give each of them equal opportunity to benefit from the campaign. It fundamentally will NOT endorse any Party - quite the opposite, but it will be of benefit to all of these parties, if they choose to engage. How much of a benefit will be up to them. As official parties, they will NOT be able to donate financially, but we might need to share networks, contacts and information. Donations will have a maximum limit to exclude any undue influence from any powerful group.

So the question is, if in one very specific campaign, it is in all of our interests to help UKIP - as we help all other parties - do we stick to the true principle of "non-partisan" and all that entails?

This will NOT help UKIP nationally, or any other party, though the ramifications might. It will NOT endorse them in any way (or any other party) and it will NOT imply that on any issue other than the very narrow and specific issues of the campaign, we endorse policies of ANY party.

In all of my planning, the only concern has been over this. We are a broadly Progressive movement and there is deep anxiety over working with UKIP in any way. If this is to succeed, we will either need a mandate to include UKIP on this, or clear indications that there is no support for working with them in any way and a decision that this must remain a "Progressive" campaign, compromising a claim to be "non-partisan" and undoubtedly excluding a chunk of support we will need.

I should make it clear, that any political campaign will inevitably benefit some parties more than others. That's just mathematics. This campaign is entirely unconcerned with that and the outcome is not the point. I know it's hard to understand that when I can't say more, but the campaign will succeed or fail on meticulous planning and I need space and some more time to do that. I have to ask you to bear with me.

I should also point out that UKIP will play a key role in this whether we include them or not. It will be harder without them.

This is an open comment thread, please, I'm urging all progressives and campaigners of any group or none to share their opinion. Spartacii, I need you to help me make this a consultation and help me get it out to people who need to comment.

Finally, I will not be bullied by any one voice. I don't care how loud anyone might shout this is a decision we all need to make and this thread and this thread alone will decide what we do. If the majority want to stay truly non-partisan, then that is what I will do, putting all personal interests aside. If the majority believe we must never work with UKIP under any circumstances, then I will take that path. I will also not allow any one group to take over the thread or influence it in any way. It's vital all feel they can leave their opinion in an open and confident way, knowing that their opinion will NOT be derided or attacked. Bullies will be moderated immediately. Also remember, there are people who will believe passionately you don't work with Labour/Greens/Libs under any circumstances either. Our personal opinions might be strong, but it's important to remember they're ours and that not everyone shares them.

You are all entitled to leave any comment you wish and to be as robust as you wish, but leave your colleagues and allies alone!

Please help me with this, it might be very, very important.